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#161739 - 04/17/08 03:17 AM Life. Updated.
IxCiel Offline
Friend

Registered: 02/24/08
Posts: 101
Loc: The Stars
Tuesday morning, I had to call 911 to come get Kevin. He'd tried to get up off the couch, and was too weak. We thought he was weak from the stomach bug we'd all passed around.

Long story short, he's very sick, and they don't know why/what. He's currently in the ICU, and they ran umpteen tests yesterday and hopefully we'll get an idea of what's going on after the results come back.

I emailed the gentleman about his interview at the University, and they don't want to miss out on speaking with him, so that's a good thing. I just don't know when he'll be out of the hospital.

I am hoping it's because of his liver that he's gotten so sick, and that with starting a medication, we'll get out of this.

Technically in 3 weeks I could give birth, because right now, I'm 34 weeks along.

Wednesday:

The main thing is his liver. It is not doing well, and in turn making other things not go well. He has fluid around his heart. Tomorrow they will be draining fluid off his abdomen, and his oncologist is going to test the fluid for lymphoma. If that doesn't pan out, then they will look for other reasons.

What they told me today, is that he is very very sick. And they want to know why, so they aren't going to guess what it might be. We will hopefully get most of the lab results back tomorrow.

I don't know what I will do about the interview situation. I have no idea when he'll be out of the hospital, much less when he'll be ready for that kind of activity again.

Things were looking up finally. Now we're back in no man's land.

Thursday AM:

A friend had asked me how the kids are doing, so I thought I'd write about that, since I'm up anyhow. I think the 911 thing was pretty traumatic for them. I wish I hadn't had to call, but I couldn't get him up off the floor. I called our friend Victor first, because I knew it would be frightening. Victor couldnt' do it either, so I had no other option. They want to go see Dad. He doesn't look very good, and isn't awake much. I was hoping for them to not see him like that. I don't know what to do. If the imagined "what's going on" would be worse than actually seeing him, then that's a good thing. If seeing him would make it harder for them, then that's not good. But I don't know unless I do it. I'm really scared. I had to leave messages for the lawyer today, for new copies of his living will, and also to finalize the part of his will about who are list for the children is if we both die. The other copies we had, are guess where? In the house in Grand Junction. He has a DNR. They came and asked him today if that's what he still wants. I told him it's his decision, though to remember he's only 34 not 85. Plus I like having him around. And we had some things we were doing, you know.

If it's Lymphoma, Dr. Prow wants to do chemo. He's been very resistant to have any, and his nurse told me if that's still the case, then they will want to talk to him about hospice.

This is not fair. This is not fair. This is not fair. This is not fair. This is not fair.

I woke up, after having a horrible time going to sleep thinking it was around 6 AM, but surprise. I even dreamed about what's going on. It's like I didn't even go to sleep.

~~~~~~~~~~~~~~~~~~~~~~~
I'm looking for miracles. If anyone has some stashed away, send it our direction, won't you please?

Ix


Edited by IxCiel (04/17/08 03:18 AM)
_________________________
All beings tremble before violence. All fear death, all love life. See yourself in others. Then whom can you hurt? What harm can you do? ~ Buddha

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#161754 - 04/17/08 09:40 AM Re: Life. Updated. [Re: IxCiel]
Veneo Moderator Offline
Archangel

Registered: 10/09/99
Posts: 2590
Loc: Kentucky, USA
Oh lx,

I'm so sorry to hear about the latest news. Praying for a miracle for you and your lovely family.

Wrapping you all in Love, Light and healing energy.
_________________________
One Lve,
~Kel

INFINITE LOVE is the only truth and everyting else is Illusion...

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#161756 - 04/17/08 10:32 AM Re: Life. Updated. [Re: IxCiel]
SolaneStar Offline
Friend

Registered: 02/17/08
Posts: 118
Loc: Canada
Too Ixciel and your family, I am always keeping you and your family in the Light and Love!!!

Ixciel have you ever heard of the lady Byron Katie, well I just finished watching lots of her video's.

I was guided to her works by BE-ing here and reading this post this morning and just thought, may-BE she could help some, Byron Katie.

Here are a few links for you and your family my dear.

I want the cancer to stop growing.

http://www.youtube.com/watch?v=-1x03oSZpSI


Bridging Heaven & Earth Show # 67w/Bryon Katie & Katie Wolf

http://www.youtube.com/watch?v=IwUwJgRBMcw&feature=related



Edited by SolaneStar (04/17/08 10:43 AM)
_________________________
Happiness for me is to know that my life has meaning and purpose, and that every day my life touches others in a positive way--whether to make them laugh or learn or both at once!

By Deanna Mascle

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#161765 - 04/17/08 06:03 PM Re: Life. Updated. [Re: SolaneStar]
IxCiel Offline
Friend

Registered: 02/24/08
Posts: 101
Loc: The Stars
Update from 11 AM.

Talked with Dr. Prow. It's lymphoma again. They are starting chemo as we speak. She mentioned banking the cord blood from the baby, as they've been able to treat non-hodgkins lymphoma with cord blood. The hospital social worker is going to come and talk to me about my needs.

More later.
_________________________
All beings tremble before violence. All fear death, all love life. See yourself in others. Then whom can you hurt? What harm can you do? ~ Buddha

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#161770 - 04/17/08 08:14 PM Re: Life. Updated. [Re: IxCiel]
IxCiel Offline
Friend

Registered: 02/24/08
Posts: 101
Loc: The Stars
This was my update for this evening. I am tired and must get to bed.

This is the update as of this evening. The lymphoma is back. They started
chemo today. Dr. Prow thinks that because it took so long to get off of the
steroids, it was suppressing the growth, and that due to the fact that it was
in a tricky place to begin with, that once he got off of them, it took off,
and about the time we were having the blood clots, and unknown sweating, and
the liver issue, it was hanging out doing it's thing. She said with chemo he
still has up to an 80% chance to beat this. She was quite honest with him
about if he didn't have the chemo, it would mean his death. As in we are
talking about a number of weeks. She has promised him that if it doesn't
work, and it's not making a difference, she won't keep doing things to him,
just to do them. I've never once seen her cry. Today she was choked up.
She reminded him, that he's a very special guy, and that now we have to get
busy.

The silver lining in all of this maybe the baby. I got one of those, get our
products because you are pregnant emails, and as I didn't know much about
cord blood banking I decided to read up on it, since I was awake at that
obscene hour anyhow. As I was reading on the many things that cord blood has
been used to treat, I came across, non-hodgkins lymphoma. When I told Dr.
Prow this, her face lit up like the sun, and she smiled and said, "Yes, you
need to do that. Good."

So. There you have it. As much as I know at the moment. I know that I have
spoken with some of you, and others I haven't had a chance to get back with
yet. know that We appreciate every single good thought, and if I cant' get
back with you right away, I havent' forgotten you. I will do my best to get
to each of you, as I know you all care. It means a great deal to me at the
moment, and I can't thank you enough, because English is very inadequate for
the words.

Much Love to each of you and those you love.
Amanda
_________________________
All beings tremble before violence. All fear death, all love life. See yourself in others. Then whom can you hurt? What harm can you do? ~ Buddha

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#161782 - 04/18/08 09:37 PM Re: Life. Updated. [Re: IxCiel]
Veneo Moderator Offline
Archangel

Registered: 10/09/99
Posts: 2590
Loc: Kentucky, USA
Prayers & light continuing Amanda

Keep thinking about that silver lining...

_________________________
One Lve,
~Kel

INFINITE LOVE is the only truth and everyting else is Illusion...

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#161784 - 04/19/08 04:25 AM Re: Life. Updated. [Re: Veneo]
IxCiel Offline
Friend

Registered: 02/24/08
Posts: 101
Loc: The Stars
I was tired and just wanted bed last night, so it's a morning update.

Thank you each again for all the support.

He looked so so so much better yesterday! I was floored really. When he asked me if he could have Indian food for lunch, I knew we are going to be ok. Those of you who know Kevin, know his love of Indian food, and know that he'd eat it 17 times a day if he could. LOL And we got an emphatic "YES!" when I asked Dr. Prow if it was alright. He said he's feeling much better, and that's a good thing. He's feeling a bit down because he said "well it's relapse." I told him that Dr. Prow's nurse had said that sometimes it takes a bit for the cancer and the technology to "catch up" and that she said if he was walking around that sick, for as long as he was, then he's one tough cookie. So he needs to keep that in mind. I know we'll get through this. As a good friend said to me in an email, the happy ending can't come in the middle of the story. And since this is the middle of the story, we're not there yet.

I have the oncologists office working on the cord blood banking thing, and contacting companies. I learned through some research, and also had an email telling me this as well, that there are a handful of companies that will waive the processing fee if there is a demonstrated medical need, like a sibling or parent has a disease that is treated by the cord blood. Which is great since this costs several thousand dollars. I've been talking to the baby, and telling her that she needs to get really strong so that we can use the blood for Daddy.

I was able to sleep until 4 AM today, and am making myself stay in bed at least 1 hour after I wake up, so that I get more rest. So I guess I must be feeling better too.

I did take the children to see him, and well it was overwhelming for them. Heck it's overwhelming in the ICU for me and I'm 33! So I can't imagine what they must think. But Kevin perked up a great deal when he saw them, and so that was good. They did ask why there are so many things hooked up to him. I explained that some were for food and water, some were for medicine, some were to check and see how his heart, lungs, blood pressure were doing, etc. And I said "you know all those machines go ping, and pong, and beep, and boop, and make all sorts of fun noises." Then they all perked up and Ewen said "Boy I bet that keeps Dad up at nights!" And Morgen and Bowie, said "yeah I bet he does." They seemed in better spirits after that. And we've had a few emotional outbursts over things that usually wouldn't bother them, so I think they are getting it all processed. I just remember to hug them often, when I see them, and tell them I love them. Also the fact that they are with people who care about them, is a great comfort to them, and also to me.

Will update again tonight/tomorrow early AM.

In the meantime, take care of yourselves, and remember to tell those you love that you love them.

Big Hugs and Love to you all,
Amanda
_________________________
All beings tremble before violence. All fear death, all love life. See yourself in others. Then whom can you hurt? What harm can you do? ~ Buddha

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#161788 - 04/19/08 07:31 PM Re: Life. Updated. [Re: IxCiel]
WriteOn Administrator Offline
Administrator
Archangel

Registered: 05/06/99
Posts: 6444
Loc: Cripple Creek, Colorado, USA
May you and Kevin and the kids and the baby be wrapped in miracles and love. It's truly inspirational to see how you are handling this so beautifully and brilliantly. May shining healing miracle light abound!

Maria
_________________________
I keep traveling around a bend -- there was no beginning, there is no end.
It wasn't born and never dies. There are no edges, there is no size.

-- George Harrison

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#161793 - 04/19/08 11:09 PM Re: Life. Updated. [Re: WriteOn]
moonflower Offline
Pooh-Bah

Registered: 01/17/03
Posts: 1890
Loc: USA
I replied to you already, Ceil but just want to say that I feel the same way that Maria does about you being an inspiration for all of us.

Hopefully Kevin continues getting better and better by the day. That is my prayer added to the same prayer of all your friends here at CE and everywhere, Ceil.

Love, Connie
_________________________
Coincidence is God's way of remaining anonymous...Einstein

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#161794 - 04/20/08 05:35 AM Re: Life. Updated. [Re: moonflower]
IxCiel Offline
Friend

Registered: 02/24/08
Posts: 101
Loc: The Stars
I was going through old emails from myself to Kevin and found this old signature:
>
> Be Happy. Remember you have a smile. ~ A wise little girl
>
> Life is like eating strawberries I discovered while I was picking them.
> There
> are times where you get one that is just like nectar, and those are the
> good
> times in life. Then sometimes you get one that looks good, and you eat it
> and
> well it's sour. Those are the hard times.
>
> Everyone gets a sour strawberry now and then, and that's just life. We
> live
> for the nectar filled ones, and keep eating on through the sour ones.
>
> Strawberry Philosophy ~ by Amanda

Both of these still hold true, even for us right now.

And if that fails there's this:

http://youtube.com/watch?v=GUcXI2BIUOQ


More later.
_________________________
All beings tremble before violence. All fear death, all love life. See yourself in others. Then whom can you hurt? What harm can you do? ~ Buddha

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#161795 - 04/20/08 06:32 AM Re: Life. Updated. [Re: IxCiel]
IxCiel Offline
Friend

Registered: 02/24/08
Posts: 101
Loc: The Stars
Yesterday was a very good day. We had nice talks and he was looking better yet again! He was also more like himself, because he was joking around with the nurses, and lots more conversational. We watched a movie together and that was nice. We had a good time together, we laughed, and we cried, but it was all lovely. Every moment.

I had to tell him yesterday exactly how sick he was. He didn't have any idea of how serious it had gotten to be looking. This was pretty sobering for him. I told him, 'I know you don't subscribe to certain spiritual beliefs, but you must have a lot of angels looking out for you, or either you are part cat, because this is twice you've evaded a serious outcome. So take that for what you will.'

Today is our 10th anniversary. This isn't exactly where I thought we'd be on our 10th anniversary, though I'll take it.

I slept until quarter of 5 this morning and stayed in bed until 6:30. I didn't feel as restless, and my mind isn't as full of thoughts, so I guess I'm getting better too.

Love,
Amanda
_________________________
All beings tremble before violence. All fear death, all love life. See yourself in others. Then whom can you hurt? What harm can you do? ~ Buddha

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#161806 - 04/20/08 07:52 PM Re: Life. Updated. [Re: IxCiel]
IxCiel Offline
Friend

Registered: 02/24/08
Posts: 101
Loc: The Stars
Well I surprised Kevin this morning at the hospital with flowers and a nice card, and then I got a nice surprise =) he was moved out of ICU today, and went up to the 5th floor.

He told me today that he didn't understand how sick he was. I think he was not quite living in this reality. He thought everyone was so upset because 50 cent (rap artist) was dying. The other theory was that he thought some Republicans were out to get him and it was a conspiracy. He was very worried about me, and was upset that I might never get out of the hospital without them 'getting' me too. That's why he was letting them do whatever they wanted to him, so that they would let me go. Then he told me that during the procedure to put in his PICT line, to administer the chemotherapy, which has to be done without anesthetic, he said there was a battle going on in 'ducktown' That in his veins lived cartoon ducks and they were attempting to defend their village by using pitchforks from the attacks by scalpels. So needless to say, he was very sick. He's come back to this reality though.

The cafeteria was able to provide a Full English breakfast for him, and he was very grateful for the food. He ate well at breakfast and asked that the food be moved up with him! He didn't want it taken away. LOL I sent them a nice thank you note for doing something that wasn't even on the menu. Then for lunch he asked for egg rolls. I think we are progressing quite well.

This afternoon the nutrition/cafeteria people brought up anniversary cake for us. Two little squares of cake decorated with purple and red hearts. It was so sweet of them to do, and it really was tasty. And since we never had any cake when we got married, since we just got married at the Courthouse over his lunch hour, that was nice. =) So now we've had wedding cake.

Then the children showed up with a huge anniversary card for us, signed by the people at the UU. You are all so sneaky!

A big thanks to the Girl Scouts who came over to clean up the yard and worked so hard to make it spiffy! It looks beautiful! Thank you so much. I never would have gotten around to that before Fall came at this rate LOL

We will see Dr. Prow tomorrow, and then I will ask about visitors etc. as I know many of you are anxious to come and see him. As I understand it, it will be limited at first to one or two people, due to him being in a fragile situation just yet. We're not quite out of the woods yet, though I think we've rejoined the path.

Anyhow, I will close for now, and in doing so, I wish each of you blessings upon blessings, joy, love and health for you and those you love.

Big Hugs,
Amanda


Edited by IxCiel (04/20/08 07:54 PM)
_________________________
All beings tremble before violence. All fear death, all love life. See yourself in others. Then whom can you hurt? What harm can you do? ~ Buddha

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#161826 - 04/21/08 05:01 AM Re: Life. Updated. [Re: IxCiel]
IxCiel Offline
Friend

Registered: 02/24/08
Posts: 101
Loc: The Stars
I created a CaringBridge site to keep you up to date on Kevin Feeley. CaringBridge is a nonprofit organization that helps friends and families stay connected.
You can visit Kevin's CaringBridge site at http://www.caringbridge.org/visit/kevinhfeeley
If your e-mail program does not allow you to click on the above link, just copy and paste the address into your web browser's address (or URL) location.
Please visit our CaringBridge site anytime. You can use the site to check in on Kevin, read the journal entries and send us messages by signing our guestbook. When you register with CaringBridge and sign our guestbook, you will automatically receive e-mail notifications each time our journal is updated. Or, you can subscribe to receive these notifications even before you sign the guestbook. (Of course, you can unsubscribe from these e-mail updates at any time.)

I am also able to print out the guestbook for him to read, and will be printing out this post for him to read so that he has an idea of exactly how many people are pulling for him. You are all great and you rock my world! Thanks for the support!


Edited by IxCiel (04/21/08 10:49 AM)
_________________________
All beings tremble before violence. All fear death, all love life. See yourself in others. Then whom can you hurt? What harm can you do? ~ Buddha

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#161830 - 04/21/08 07:36 AM Re: Life. Updated. [Re: IxCiel]
MoonDragon Offline
Journeyman

Registered: 02/19/08
Posts: 54
Loc: Kochi, India
_________________________

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#161837 - 04/21/08 10:31 AM Re: Life. Updated. [Re: IxCiel]
BlueDove Offline
Veteran

Registered: 05/25/02
Posts: 1218
Loc: ~Threshold~



_________________________
When I speak, I speak from my heart.
When you speak, I listen with my heart.

heart

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#161843 - 04/21/08 11:33 AM Re: Life. Updated. [Re: BlueDove]
IxCiel Offline
Friend

Registered: 02/24/08
Posts: 101
Loc: The Stars
If the link didn't work, try it again. I fixed it.
_________________________
All beings tremble before violence. All fear death, all love life. See yourself in others. Then whom can you hurt? What harm can you do? ~ Buddha

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#161847 - 04/22/08 08:11 AM Re: Life. Updated. [Re: IxCiel]
IxCiel Offline
Friend

Registered: 02/24/08
Posts: 101
Loc: The Stars
Well I have officially broken the 8 hour sleep barrier!!! Boy that felt really good.

Yesterday, Dr. Prow said she's taking him off of the anti-biotics, because there is no sign of infection anywhere. His labs are completely back to normal. Even the liver ones. The fluid that was drawn off his abdomen, which amounted to 4 LITERS, is being sent out of house to be tested because it looks concurrent with diffuse large type b cell lymphoma (which is what he had/has). She said as soon as he can walk, talk, eat, shower, do bodily functions on his own, he's out of the hospital. It could be as soon as Friday! She also said that the chemo schedule will be every 21 days. Which will put the 3rd treatment on guess where? May 29. Life sure is funny. The cardiologist was in and he said he's taking Kevin off of one of the heart medications. The endocrinologist said as soon as he's off the prednizone (steroid) they'll take him off the insulin. The liver specialist, said things look great, and he told me the other day, after the lymphoma is out of there, the liver will heal itself completely, and there will be no damage. What a fabulous organ!

I am seeing the midwives at the clinic today at 11:30. The oncologists office got me in quick, and pulled some strings. They are also getting the cord blood banking arranged. This is like our ace in the back pocket.

Kevin commented yesterday, that it was nice for Tegan to get here just in time to save Dad's life. Which is interesting because we had been worried about the timing of the birth, since he still was so sick, and I was wondering what on earth I was going to do with an new infant and an invalid husband. It was the right time all along, and we just didn't know until now. Someone has a sense of humor...

He looked better again yesterday as well. His appetite is back, and that is great! The physical therapy ladies are getting him busy and he seems to be in such wonderful spirits as well.

Ron and Nancy have generously taken our guinea pigs for a while, so that I don't have to worry about making sure they have food/water/clean houses. I want to say thanks to them for their kindness. =)

Asa, we had the chili last night, and it was so good! Thanks so much for making it. Ewen had 4 helpings LOL He ate more than I did!

I hope each of you have a beautiful day, and no matter what happens to you today, remember that life is good, and that you are loved more than you can ever know. Cause I didn't know how much we were loved until this happened.

Thanks to each of you for everything.

Hugs,
Amanda


Edited by IxCiel (04/22/08 08:11 AM)
_________________________
All beings tremble before violence. All fear death, all love life. See yourself in others. Then whom can you hurt? What harm can you do? ~ Buddha

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#161848 - 04/22/08 08:52 AM Re: Life. Updated. [Re: IxCiel]
IxCiel Offline
Friend

Registered: 02/24/08
Posts: 101
Loc: The Stars
There's a song by Paul Simon that fits this situation with Tegan being born very well.

It's called Born at the Right Time and it's from his album Rhythm of the Saints.

Down among the reeds and rushes
A baby boy was found
His eyes as clear as centuries
His silky hair was brown

Never been lonely
Never been lied to
Never had to scuffle in fear
Nothing denied to
Born at the instant
The church bells chime
And the whole world whispering
Born at the right time

Me and my buddies we are travelling people
We like to go down to restaurant row
Spend those Euro-dollars
All the way from Washington to Tokyo
I see them in the airport lounge
Upon their mother's breast
They follow me with open eyes
Their uninvited guest

Never been lonely
Never been lied to
Never had to scuffle in fear
Nothing denied to
Born at the instant
The church bells chime
And the whole world whispering
Born at the right time

Too many people on the bus from the airport
Too many holes in the crust of the earth
The planet groans
Every time it registers another birth

But among the reeds and rushes
A baby girl was found
Her eyes as clear as centuries
Her silky hair was brown

Never been lonely
Never been lied to
Never had to scuffle in fear
Nothing denied to
Born at the instant
The church bells chime
And the whole world whispering
Born at the right time
_________________________
All beings tremble before violence. All fear death, all love life. See yourself in others. Then whom can you hurt? What harm can you do? ~ Buddha

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#161873 - 04/22/08 07:11 PM Re: Life. Updated. [Re: IxCiel]
Venus Offline
Old hand

Registered: 10/20/99
Posts: 807
Loc: Massachusetts, USA
Aw IxCiel,

What a beautiful song. So perfect for your little Tegan. What an amazing and awesome mission your precious little angel has chosen to undertake in this life. I am in so much awe of your little one's bravery and immense love. You and your family are in my thoughts and prayers. Keep expecting that miracle and soon Kevin will be home with you celebrating your 10th anniversary in health, joy and love. Please continue to keep us posted.

_________________________
Go confidently into the direction of your dreams! Live the life you always imagined. ~ Henry David Thoreau ~

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#161914 - 04/23/08 08:14 PM Re: Life. Updated. [Re: Venus]
IxCiel Offline
Friend

Registered: 02/24/08
Posts: 101
Loc: The Stars
Yesterday was spent mostly running around for me, having the appointment with the new midwife. She's very lovely. I like her a great deal, and it sounds like she understands that birth is a normal process that has been going on for a few years now, and there's no need to get so uptight. The only issue, is that clinic midwives had to step down in order for the OB's to continue to to VBACs. Apparently they felt 'superfluous' at births. At 37 weeks I will get transfered to an OB, and then we'll have the whole push and shove to get what I want issues coming up.

Kevin was feeling a bit down yesterday, as they had to put in a port so that they didn't have to keep sticking him, and could easily administer the chemo. He told me he wasn't running with original parts anymore. I told him he should look on the bright side. Not everyone gets an upgrade. =)

I feel if I can help him keep his spirits up, that will in turn help him heal faster. He ate well yesterday.

Today, he's been getting the hard workout from the PT. They've been told to 'crack the whip' on multiple fronts, one being me. As it stands, I don't see him physically able to come home on Friday, as he needs to be able to do a few things first before he can do that. Not that I don't want him here, but if he can't walk around on his own, get to and from the bed/bathroom, we're screwed. I can't lift him, so he has to do it.

He's still eating well, and seems in better spirits as the days pass.

I had a realization yesterday. It's not that I'm so strong, it's more that each of you give me a little piece of your own strength to have right now as we go through this, and those little pieces all add up to Super Amanda. So thanks for the loaners. You are all such dear people, and I am so much richer for having you touch my life.

Oh yes I forgot earlier. I talked with a very nice man from the Cord Blood Registry, which is the company we are going to be doing business with. He told me that usually the medical referrals, the thing that lets you waive the processing fee, usually takes 30 days to get an yes or no on. But since we don't have 30 days, he's going to put a rush on it. He also informed me that if we do get approved, we will only have to pay a $150 courier fee, which is what it costs to get the blood from the lab here, to their lab in Tucson, AZ. And that doesn't need to be paid until after Tegan is born.

I also forgot to mention, that I will be having an ultrasound on Wed. morning for a position check, and I will ask them to tell me what the sex is, so we'll find out if the acupuncturist has been correct \:\) Just in case, we do have a boy name picked out.

I am really tired tonight. I feel like I could have gone to bed an hour ago.

I wish you all a good nights sleep, and sweet dreams.

Love and Hugs,
Amanda
_________________________
All beings tremble before violence. All fear death, all love life. See yourself in others. Then whom can you hurt? What harm can you do? ~ Buddha

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#161922 - 04/24/08 08:24 AM Re: Life. Updated. [Re: IxCiel]
IxCiel Offline
Friend

Registered: 02/24/08
Posts: 101
Loc: The Stars
I reconnected with a dear friend from college this week. Actually she was more like the sister I never got, even though I kept asking for one. We'd had a fight shortly before graduation, what about I can't remember, and neither does she. Probably something trivial, but as she said, one or both of us thought was the most important thing in the whole world. And we hadn't spoken to each other in 10 years. Now we've been able to pick back up where we left off, but it would have been really great to have those 10 years in addition to the many years we'll have here on out. I regret losing touch with her, as does she with me.

I guess my point in writing about this here, is to say that a good friend is hard to come by, and you should never let small things grow into mountains. Because you never know what will happen in your life, and when you'll need that sister/friend.

So that's my plug to all of you, to not let the little things stand in front of friendship.

I hope that each of you have a beautiful day because you are all beautiful souls, and I cherish you.

Hugs,
Amanda
_________________________
All beings tremble before violence. All fear death, all love life. See yourself in others. Then whom can you hurt? What harm can you do? ~ Buddha

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#161935 - 04/25/08 08:37 AM Re: Life. Updated. [Re: IxCiel]
IxCiel Offline
Friend

Registered: 02/24/08
Posts: 101
Loc: The Stars
Yesterday, Kevin announces to me: 'I'm bored.' Huzzah!!! That means he's feeling much better. When I said 'That's great honey!' with a big smile on my face, he wanted to know what exactly I meant by that statement. I said 'Well if you're deathly ill, you can't be bored. The fact that you are feeling bored, tells me that you are much better.' 'Oh.' he says. I think the lack of eyewear, is part of the problem. When he was in the hospital for pneumonia, he lost one of his contacts, and since he has no more, he's been going around without any corrective eyewear. And of course, he doesn't remember his prescription. And of course, it's been a long time since he had an exam, so he needs a full new exam. And he did ask for an eye doctor to come up to the room, but they can't do it until he's out of the hospital.

I was so tired last night, I feel asleep at 7:30 on the couch. We have the best children in the whole world. Not only did they clean up the table after finishing their dinner, they also put themselves to bed at the appropriate time. If I could only bottle this, I'd make a fortune, I tell you!

I've found myself looking at alternative cancer therapies. Just finding lots of resources, and wondering if any of them work, and if they work better than what we are doing. Is this out of desperation? Is this a good idea? Do other people do this? I don't know. What I do know is that I want Kevin to get well. I want to have my best friend to hang out with, and talk with, and spend time playing with our children with again.

Our acupuncturists have told me that as soon as Kevin is able, they want him down to get his body rebuilding started. Dr. Prow is VERY resistant to this, and has been the whole time. I wanted him to have the acupuncture anyhow during the first go around, but he just wanted to follow the regimine they laid out for him. Which was a complete 180 degree turn around from before the cancer and his opinion of the medical industry, as he liked to call it. Maybe it was the being faced with your own mortality. I talked to him about it yesterday, and said you are going to have to think about what you want to do. You followed exactly what the doctors wanted last time, and here we are. If you'd have been having acupuncture all this time, would you have gotten as rundown and weak as you are? He said 'maybe not.' I told him 'you know what I think.' and he replied 'Yes, you've told me often enough.' I guess since he's the one with the disease, he should call the shots. It's hard for me to just stand there, and not see him have something I know can help. And the resistance on the part of the doctors, is because they are ignorant, and don't want to educate themselves. Which makes it harder for me.

I have learned about a couple of OB's who seem to be a great deal more open minded about this natural process we like to call giving birth. So I have 3 names I can use.

Have a wonderful day, and we'll talk again tomorrow. (This is kinda wierd, letting everyone read your journal on purpose, but oddly theraputic for me.)

Take care of yourselves today.
Hugs and Love,
Amanda
_________________________
All beings tremble before violence. All fear death, all love life. See yourself in others. Then whom can you hurt? What harm can you do? ~ Buddha

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#161939 - 04/26/08 09:46 AM Re: Life. Updated. [Re: IxCiel]
IxCiel Offline
Friend

Registered: 02/24/08
Posts: 101
Loc: The Stars
When we arrived yesterday, Kevin was lit up like a Christmas tree. He was really excited to see us, and then he announces, 'I walked today!' Whooo-Hooo!!! It was so great! I am so proud of him! I can tell he's working really hard, and the want to come home is a powerful motivation. He did tell me that right now his focus is getting home, and he doesn't even feel like he has cancer. He just wants to be home. So he told me he isn't thinking about therapies at the moment. I guess that's a nudge to me to be patient...Those of you who know me, know that sometimes I have a tendency to be umm...impatient a bit? Though I'm much more patient than I used to be, just ask my mom about how I was at 15! (I love you Mom!)

The children are with the other grandparents this weekend. I thought it would be nice for them to go down there, since it'd been a while since they got to go. And as expected they were all packed...on Thursday...ready to go LOL

It was very quiet last night here, and I got to feeling a bit blue. So I had myself a good cry about everything, and while it felt nice, it didn't help me feel better. Then I got an email from a dear friend. And we had a brief flurry of emails, and by the time I started yawning (read, ready for bed) I was feeling so much better. Thanks Zala!

We used to have these Charlie Brown pillow cases, with all the Peanuts characters on them when I was about 4. There was a saying on it about friendship, and I can't for the life of me remember what it is...Mom where are they, I know you still have them tucked away somewhere. Well anyhow, it's about friendship and being one of the reasons life is so great.

So Thank you to each of my friends. You enrich my life, and hold me up when needed.

I love you all.
Have a great day everyone!
Amanda
_________________________
All beings tremble before violence. All fear death, all love life. See yourself in others. Then whom can you hurt? What harm can you do? ~ Buddha

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#161941 - 04/27/08 05:49 AM Re: Life. Updated. [Re: IxCiel]
IxCiel Offline
Friend

Registered: 02/24/08
Posts: 101
Loc: The Stars
Saturday eve. update:

This is going to be very brief, as it has been a long day.

Someone sent me a message today via the ethers. Maybe it was my Grandma, maybe it was an angel. I don't know, all I know is whoever poked me, got us out of a sticky situation that could have ended up not so great had it waited. When I arrived this morning, Kevin didn't 'look right' to me. His pulse was up in the 130's and had been normal yesterday when I left at 8 PM. He also looked just kinda poopy. Like something wasn't right. He didn't want breakfast, and I said something to the nurse, who agreed with me. She mentioned it to Dr. Ottoman, who is on call this weekend, and he brushed it off saying 'everything's fine' Well I could see for myself it WASN'T fine. Something wasnt' right, otherwise why had his pulse jumped from normal range up to 130-140 and then up to 159? He was complaining of being 'uncomfortable' but could not say how or why. He did eat a few bites of lunch, and this afternoon, I was sitting there holding his hand, and laying my head down on the bed, wondering what was wrong with him, when all of a sudden I heard this voice say 'Don't wait until Monday' I said 'Don't wait until Monday for what?' But of course I got no reply. So I went out and spoke with the Nurses, and to wrap this up, Dr. Ottoman was still saying everything was fine, they had another Dr. come up and look, and she said she didn't feel comfortable consulting since she wasn't an oncologist, Dr. Prow was left a message at home, and then his nurse took his temperature orally, and guess what? Temp of 102.3. Well Who is justified now? Me that's who! The other doc called back up and ordered a chest x-ray. Then his nurse says to me, I just checked his chart, and if he spikes a fever there are standing orders for blood cultures, urninalysis, and 2 antibiotics to be started. Yay for Dr. Prow. I knew she wouldn't have blown me off. Then his nurse from yesterday had come to have a look at him, and she agreed that he didnt' look as good as yesterday to her either.

So. Thanks Grandma, or whomever was talking to me today. You did good. And the staff said it was good that I was insistant as well, because they were able to catch it quickly.

And this evening, he looked much better, and my wierd gut feeling was gone. he ate some dinner, and his fever broke while I was out getting food. Also his pulse was down, because I couldn't see it on his neck anymore, like earlier.

Thank you to whomever brought the lovely care box. That was very nice.

Talk to you all tomorrow.

Love,
Amanda
_________________________
All beings tremble before violence. All fear death, all love life. See yourself in others. Then whom can you hurt? What harm can you do? ~ Buddha

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#161957 - 04/28/08 11:34 AM Re: Life. Updated. [Re: IxCiel]
IxCiel Offline
Friend

Registered: 02/24/08
Posts: 101
Loc: The Stars
Yesterday, when I arrived at 7:30 he promptly threw up. He had some nausea most of the day off and on, and in the late afternoon, he wanted a 7up. Then later he had rice crispies, and a dr. pepper. He looked much much better than he did on Saturday.

This morning at 3:45, I see him while I'm sleeping, and he says to me, "Honey, I just don't feel very well." I wake up and decide, I better go in. I tell you one of these days the ER people will acually get it right, when they ask me "Do you need to go upstairs now?"

When I arrived, I spoke with his nurse, and he said that he was resting now, but it was around 3:45 that he said he wasnt' feeling well.

I am either tapping into the gnosis, or else I'm losing my mind...maybe it's one and the same thing.

This morning (read sane time to get up) around 7 AM he looked a great deal better, and he was perky. I got an opportunity to speak with Dr. Prow, about what happened this weekend, and told her, how Dr. Ottoman wasn't very responsive. I also spoke with the head of the dept. up here as well.

He ate some breakfast, and then he did throw up a bit, but I think he kept his food down.

One step forward and two back.

Talk to you all later.
Hugs,
Amanda
_________________________
All beings tremble before violence. All fear death, all love life. See yourself in others. Then whom can you hurt? What harm can you do? ~ Buddha

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